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Lost in Florida

Personal Blog

Categories: Life Updates

Endoscopy for baby

Our sweet boy had his first general anesthesia for an upper endoscopy @WolfsonChildren yesterday. Mom and dad were stressed out but he did amazing.  The doctor was really sweet (and funny enough, his own son’s name is Soren too!), and one thing I like in Jacksonville is that they have great specialty care for children! 👨‍⚕️.
Everything looked healthy (which, of course, is great news) and we are waiting for the biopsies’ results now. We were hoping we would finally get some answers, but this might not be it yet. 

Because of the pandemic and the covid delta variant being insane here in Jacksonville, he had to get a Covid test with a 3 day-window before his procedure day – so Saturday morning. The test was done by a Wolfson pediatric nurse at Baptist hospital. The man was really fast. Soren hates covid tests – he got so many :(, but this time he was only about to cry when it was over. He was negative so the endoscopy was on track, and we had to self-isolate until then. I was allowed to work from home as the beginning of the months are always very busy for me.
We had to checked in at 7 am for his procedure that was scheduled at 9:10 am. His GI specialist was not available before the end of the month and I didn’t want to wait further as Soren has been very sick lately, so another MD did his procedure.


We almost did not wait before being installed in a pre-op room. We saw a few of nurses, the anesthesiologist and the GI. Everyone explained what they were going to do and asked confirmation of medical history.
We did not sleep the night before. I think Soren maybe was feeling my stress and it was stressing him out, because he kept turning and crying until 3 am (and my alarm clock was at 5:30). After they took his vitals and he changed to the gown, I turned off the light and snuggled with him so he slept a bit. My heart sank when they announced a code blue on the speakers and I held my baby a bit tighter.

Right on time, they came to take him, I kiss him quickly and tried to act cool as I was having a little panicking moment inside. Then I gathered our stuff and went back to the waiting room. It was SO fast. The doctor came to tell me how it went and what he saw (nothing wrong visually, he took as many biopsies as possible) and then I waited a bit longer while Soren was in recovery room. They took me in a post-op room and I arrived at the same time as Soren. He was awake and drinking. He looked pretty chill. He didn’t say a word to  anyone though. He is a chatty boy but not with strangers lol. He looked cozy in bed but they installed him on me in the chair, and gave him a slushy. He was quiet when the nurses were in the room but when they would go out, he would raise the hand with the IV and complain. I can’t blame him, IV are uncomfortable at best and hurt on the hand. I know I wanted to get rid of mine really badly after I gave birth.

Because he was fully awake and was drinking and not getting sick, he was released and we could head home to rest.

They told me he would be tired and dizzy, could possibly throw up (and there could be blood but totally normal) and that we had to stick to quiet activities. I was expecting a quiet afternoon and a long nap, but nope, after a couple of hours he wanted to eat and he was all over the place as if nothing happened 🙂

 

He looks great and can have tons of energy, but he also regularly has a high fever, not eat or do anything but sleep for a few days, have bouts of projectile vomiting, and I won’t even mention the horror stories of what’s happening down there 😬.
After getting better, it just looks like it’s getting worse and this is becoming really hard to navigate by myself. I ran out of sick days and annual leave but I have FMLA/FSWP and I’m grateful for a job that has been quite flexible with me and the health insurance it provides. Adjusting to the US healthcare system has not been easy! When you are from Europe, you are kind of used to everyone having access to care. Here, you’re lucky if your work comes with benefits. I guess it refrains people from abusing the system too, but I find it pretty sad, when my son is very sick outside his doctor’s office hours, to pause and wonder if I can afford the $100 of the ER trip.
It’s been a really hard couple of weeks, and I have been having Ménière episodes too because I am stressed out and don’t eat or sleep well. The perfect combination to trigger bad crisis.

Soren looks really good today and I hope he is able to visit his dad this weekend and go back to daycare on Monday.

Categories: Life Updates

First Haircut

I was trying to see how curly Søren’s hair was going to be, but his hair was getting long, sweaty very easily, and it kept getting stuck in the bibs. I heard his dad asking “isn’t it time for a haircut?” and since he was about to get surgery and I didn’t want his hair to get stuck on the hospital robe, it sort of gave me the push to make an appointment for his first haircut.

He was a little confused but let the stylist do whatever she wanted. No cries or complaints, he didn’t move or anything.
He went from baby to little boy in 10 minutes 😱.

We went to Sharkey’s Cuts for Kids Jacksonville, FL
1650 San Pablo Rd S Suite 11, Jacksonville, FL 32224
You can easily make an appointment to any Sharkey’s Cuts for Kids online, we took the “Boys 1st Haircut (certificate, picture & lock of hair)” package, it was $25 something before tip.

Categories: Recommendations

What to watch

Ocean (France TV Slash)
Unfortunately, it’s only available in French on France.TV, but if you do understand French, I definitely recommend.

I randomly saw an Instagram post about season 2, and that’s how I discovered there was an intimate show about Ocean. Ocean is a French comedian, a trans-man previously famous for his stand-up show “la lesbienne invisible” (the invisible lesbian).
The first season follows him as he begins his FtM transition, including the first hormone shot, the coming-out – one private and one public, his family and friends’ adjustment and misgendering mistakes… and all the questioning and restructuring he needs to go through becoming a white (heterosexual?) male as a radical feminist. I’m barely exaggerating saying it felt like becoming the enemy. His friends also pointed out to him he now had a pattern of dating young women. All this triggered a will to date a larger spectrum of people (shown more in season 2), non-binary people, maybe men, and a clear annoyance of looking too much like a boring heterosexual couple with one of his partners. Who he sleeps with is not what is interesting here, the reflection on it is.

Season 2 starts two years after the end of season 1, and Ocean now benefits from “passing” (which means he is perceived as a cisgender man). Aware of his privilege, he wanted to share the screen time with other people of diverse backgrounds, journeys and identities. He goes to meet them and let them tell their stories, educative for all of us. Each episode is around a theme, like racism, fatphobia, intersex, disability and more.
I watched the season 1 in one sitting and watched the season 2 the next day. I think it’s a great introduction to transgender issues. My only criticism would be that I feel you maybe have to already be a little educated on the subject to understand everything as many terms are thrown around and may be confusing to some who don’t know them.

https://fb.watch/75iUkxurcN/

 

Trial by Fire (HULU)


It’s an Edward Zwick movie so you already know two things: 1) it’s going to be quality, 2) you’ll cry at some point. It is based on the real story of Cameron Todd Willingham who was accused and then convicted of killing his 3 toddler daughters, killed in a fire that destroyed the family’s home. Everything is obviously horrible and tragic, but I won’t say more to not spoil the movie if you are not familiar with the case.

Life Overtakes Me (NETFLIX)


This 39-minute film is on Resignation Syndrome, an illness that put you in a coma-like state and that hundreds of refugee children are suffering from in Sweden, and that is now developing in other countries (there are known cases in Australia refugee detention centers). I saw the trailer and I had SO MANY questions. Why does this happen, how does it start, what is it really like for the child and the family, how long can it last, how does it stop? It seemed both insane and fascinating, and luckily the film answered all my questions. Resignation Syndrome is provoked by extreme trauma (they are refugees, friendly reminder that refugees are not immigrating for pleasure, they are fleeing a terrible and life-threatening situation), and an uncertain resident status. I have zero problem imagining how terrifying and stressful it must be to face deportation and being sent back to the horrors you escaped (I mean I am stressed about my own immigration status when the worst that can happen to me is to be send back to a country with healthcare), but it seems incredible to be completely unresponsive for months as a result! The human body and brain will never stop surprising me! Check out this film if you’re curious about this too!

Categories: Planner Stickers

Wonderfall

Who else is already done with summer and planning for #fall? 🙋🏼‍♀️
I made my first full weekly kit stickers with fall colors.

The kit includes: 8 full boxes, checklists, weekday headers, 8 half boxes, 8 quarter boxes, water trackers, habit trackers, labels, flags, icons for all occasions, washi, decorative stickers (+ some bonus ones!) and more 🙂

 

☆ PRINTABLE PLANNER STICKERS – ERIN CONDREN 2021 WEEKLY KIT INSTANT DOWNLOAD ☆

Categories: Prison

The monthly call

Sometimes, I don’t hear from my husband for days, as the prison is holding emails, just because they can, and we don’t have phone calls. And then, I receive a letter or I do get our monthly phone call. And it’s here. That homey feeling. I remember everything. The connection, the love, the strength. For a few minutes, it feels like we have never been separated. We try to update each other quickly on what’s going on for us, mostly our son’s medical problems or needs on my side, we joke, we express our love and commitment. It goes fast, but it gives me a high for a day or two. I’m loved, I have a caring husband, we have a family. Then darkness takes over again, as quickly as that phone call went by. The hurt and pain of missing him is back. The helplessness towards his situation, my situation, and our baby’s situation. More often than not, the hopelessness even. Imagine only hearing the voice of the person you love ONCE a month. 

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Criminal Justice Reform / Prison Rights Activist.
Small Business @ Pentionery.
Mother in Training.

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